Leila Jamal

Leila Jamal received her BA in Philosophy, Politics, and Economics from Oxford University in 2002.  She earned her ScM in genetic counseling from Johns Hopkins University and the National Institutes of Health in 2012 and her PhD in bioethics and health policy from the Johns Hopkins Bloomberg School of Public Health in January of 2017.  She is also a practicing cancer genetic counselor at the University of Maryland.  Leila’s research interests include rare disease research ethics and the regulation of new technologies in healthcare and public health.  Her dissertation focused on the roles of patient advocates in rare disease research policy.  During her fellowship, Leila will develop an ethical framework for returning genetic results to patients and their relatives who are enrolled in the Baylor-Johns Hopkins Centers for Mendelian Genomics, an undiagnosed disease research project.  She is also interested in developing novel approaches for sharing genetic information within families while respecting individual privacy.

Recent Publications:  

Jamal L, Robinson JO, Christensen KD, et al; When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. AJOB Empirical Bioethics, 2017; 8(2): 82-88.

Hercher L, Jamal L; An old problem in a new age: Revisiting the clinical dilemma of misattributed paternity. Applied & Translational Genomics, Available online 1 February 2016.

Angrist M, Jamal L; Living Laboratory: Whole genome sequencing as a learning healthcare enterprise. Clin Gen. 2014 Jul 21. doi: 10.1111/cge.12461.  (PMID: 25045831)

Mathews DJH, Jamal LRevisiting respect for persons in genomic research. Genes. 2014; 5(1):1-12. (PMID: 24705284)

Jamal L, Sapp JC, Lewis K, Yanes T, Facio F, Biesecker LG, and Biesecker BB; Research participants’ attitudes towards the confidentiality of genomic sequence information; Eur J Hum Genet, November 27, 2013 (PMID: 24281371)

Srivastava S, Cohen JS, Vernon H, Baranano K, McClellan R, Jamal L, Naidu S. and Fatemi A; Clinical whole exome sequencing in child neurology practice. Annals of neurology 2014: 76: 473-483. (PMID: 25131622)