| 8/26/2010- | Ethics and the standards of prevention in HIV prevention trials: Correspondence in AIDS, the official journal of the international AIDS society. 10 September 2010, 24(14), p 2298-99. By Jeremy Sugarman and William Grace ...
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| 8/26/2010- | Genetics and Public Policy Center to study genetic researchers’ views on their work: The National Human Genome Research Institute (NHGRI) has awarded the Genetics and Public Policy Center a two-year grant to examine the views and practices of genetic researchers who collect and study banked human DNA. The center will work in collabor ...
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| 8/25/2010- | The burden of emergency department use for sickle-cell disease: An analysis of the national emergency department sample database: It is estimated that there are 100,000 people living with sickle-cell disease (SCD) in the United States [1]. The most common manifestation of SCD is vaso-occlusive crisis, which is characterized by intermittent, unexpected episodes of excruciating p ...
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| 8/19/2010- | The Ethical Review of Health Care Quality Improvement Initiatives: Findings from the Field: Questions have been raised about whether and how health care quality improvement (QI) initiatives ought to be reviewed to address possible ethical issues associated with them. These questions have focused primarily on whether some QI initiatives meet ...
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| 8/11/2010- | Berman Institute scholar calls for consistent regulation of direct-to-consumer genetic tests: An opinion piece by a legal scholar from the Johns Hopkins Berman Institute of Bioethics in this week’s issue of Nature calls for the Food and Drug Administration to regulate all health-related genetic tests — whether available directly to consumers ...
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| 8/6/2010- | Carlton Haywood Jr. awarded grant to study patients' opinions of 'opioid agreements': The Berman Institute’s Carlton Haywood, Jr. has been awarded $20,000 by the Blaustein Pain Research Fund to study how patients with sickle cell disease feel when caretakers ask them to agree to certain terms prior to receiving opioids for pain manage ...
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| 8/4/2010- | Bioethicist's talks commemorate centennial of sickle cell disease: Carlton Haywood Jr., also a sickle cell patient, focuses on the role of race in the doctor-patient relationship ...
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| 8/2/2010- | Beyond 'compliance': To contribute data to conceptual explorations of the role of institutional culture in promoting research ethics and integrity. Method: The authors highlight relevant themes that emerged from a multimodal needs assessment conducted under the Johns Hop ...
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| 7/30/2010- | Genetics and Public Policy Center Director to Lead Genetics Education Organization for Health Professionals: Joan Scott, director of the Genetics and Public Policy Center (GPPC), will leave Johns Hopkins University to become executive director of the National Coalition for Health Professional Education in Genetics (NCHPEG), effective Sept. 7. ...
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| 7/22/2010- | Assessing the Readability of Non-English-Language Consent Forms: The Case of Kiswahili for Research Conducted in Kenya: A large body of literature supports the notion that the language used in informed consent forms is not comprehensible to most research participants. Creating comprehensible informed consent forms for international research presents a further challeng ...
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| 7/9/2010- | Hopkins faculty lead development of report to FDA on ethical, scientific issues related to 'post-market' clinical trials: Amid growing concerns about clinical trials for drugs that have been approved by the F.D.A. but are later linked to serious health risks, an independent committee at the Institute of Medicine led by two professors from Johns Hopkins University has de ...
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| 6/29/2010- | Reflections on Governance Models for the Clinical Translation of Stem Cells: Governance models for the oversight of human embryonic stem cell research have been proposed which mirror in large part familiar oversight mechanisms for research with human subjects and non-human animals. While such models are in principle readily e ...
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| 6/26/2010- | Trust in physicians and racial disparities in HIV care: Mistrust among African Americans is often considered a potential source of racial disparities in HIV care. We sought to determine whether greater trust in one's provider among African-American patients mitigates racial disparities. ...
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| 6/25/2010- | The Global Burden of Unintentional Injuries and an Agenda for Progress: According to the World Health Organization, unintentional injuries were responsible for over 3.9 million deaths and over 138 million disability-adjusted life-years in 2004, with over 90% of those occurring in low- and middle-income countries (LMIC). ...
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| 6/18/2010- | Update in palliative medicine: This update reviews hospice and palliative medicine articles
published between January 1, 2008 and December 31, 2008. ...
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| 6/18/2010- | Berman Institute scholar calls for a new legal, ethical framework for research with human tissue specimens: A lawyer and researcher at the Johns Hopkins Berman Institute of Bioethics says a new legal and ethical framework needs to be placed around the donation and banking of human biological material, one that would more clearly define the terms of the mat ...
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| 6/16/2010- | Child supervision practices for drowning prevention in rural Bangladesh: A pilot study of supervision tools ...
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| 6/16/2010- | National policy-makers speak out: are researchers giving them what they need?: The objective of this empirical study was to understand the perspectives and attitudes of policy-makers towards the use and impact of research in the health sector in low- and middle-income countries ...
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| 6/10/2010- | Hospital self-discharge among adults with sickle-cell disease: Associations with trust and interpersonal experiences with care ...
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| 6/8/2010- | Bioethicists examine trust toward physicians among adults with sickle cell disease: Faculty at the Johns Hopkins Berman Institute of Bioethics have published a study that shows, among adults with sickle cell disease, that unsatisfactory interactions with health-care providers in the past affect their trust in the medical profession ...
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| 6/8/2010- | Bioethicists examine ethical oversight in 'quality-improvement' initiatives: New findings from Johns Hopkins suggest that most quality-improvement (QI) initiatives in U.S. hospitals are reviewed internally before they are conducted, but there is not routine consideration of the ethical issues associated with them. ...
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| 6/3/2010- | Berman Institute Faculty to Lead FDA-Sponsored Examination of Ethical, Scientific Issues in Drug-Safety Studies: The director and a core faculty member of the Johns Hopkins Berman Institute of Bioethics have been appointed co-chairs of an Institute of Medicine committee that will evaluate the scientific and ethical issues involved in studies of drug safety afte ...
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| 6/2/2010- | An absence of evidence in 'evidence-based rulemaking': Open peer commentary by Jason Gerson and Steven Goodman on 'The case for evidence-based rulemaking in human subjects research', AJOB 10(6) June 2010 ...
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| 5/28/2010- | Bioethicists to develop model for providing care to research subjects in low-resource communities: The National Institutes of Health has awarded a grant to investigators at the Johns Hopkins Berman Institute of Bioethics to study obligations researchers may have to provide ancillary health care unrelated to their study while working in impoverishe ...
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| 5/24/2010- | Drugstore Genetic Testing: Joan Scott, Director of Johns Hopkins Berman Insitute's Genetics and Public Policy Center, discusses direct-to-consumer genetic test kits. ...
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| 5/11/2010- | Tweeting Science and Ethics: Social Media as a Tool for Constructive Public EngagementOpen Peer Commentary - American Journal of Bioethics ...
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| 4/30/2010- | Relevant content for a patient-reported outcomes questionnaire for use in oncology clinical practice: Purpose
To investigate relevant patient-reported outcome (PRO) domains for oncology clinical practice.
Methods
We conducted cross-sectional semi-structured telephone interviews with patients with breast and prostate cancer and clinicians. Usin ...
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| 4/29/2010- | Sickle cell disease in the United States: The past 100 years since James Herrick's first description of sickle cell disease in the United States have been characterized by the gradual development of management strategies. We review the progress in sickle cell disease management in the United ...
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| 4/16/2010- | Stanford Encyclopedia of Philosophy: Public Health Ethics: New Entry: "Public Health Ethics" by Ruth Faden and Sirine Shebaya ...
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| 4/15/2010- | What keeps you up at night?: Purpose: To explore specific patient care experiences that genetics professionals associate with distress and the emotions engendered by those experiences. ...
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| 4/5/2010- | Weight-based stigma and physician bias: AMA Journal of Ethics Virtual Mentor. Clinical cases. Commentary by Lawrence Cheskin, MD, Scott Kahan, MD, MPH, Gail Geller, ScD, MHS ...
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| 4/2/2010- | What Matters in Health Disparities Education—Changing Hearts or Minds?: All medical educators face this question when planning curricula and in the daily course of teaching: “Is it enough to give our students the cognitive tools they need to function effectively, in the form of knowledge or skills, or should we also focu ...
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| 4/1/2010- | Long-term effectiveness of patient-centered training in cultural competence:: Purpose: To determine whether the effects of a patient-centered cultural competence curriculum could be sustained for one year. ...
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| 3/31/2010- | Toward definitive trials and improved outcomes of cardiac arrest: Editorial: published online may 29, 2010. Circulation. By Myron L. Weisfeldt, Jeremy Sugarman and Karen Bandeen-Roche ...
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| 3/29/2010- | The Experiences of Children Enrolled in Pediatric Oncology Research: Implications for Assent: Most children with cancer enroll in clinical research trials. Whenever possible, children must provide their assent before enrolling in research studies. We studied what children aged 7 to 18 with cancer understand about research, their research-rela ...
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| 3/26/2010- | Focus On: Direct-to-Consumer Genetic Tests: Ethically informed decision-making to be aided by public database
Creation of Genetic Test Registry will be an important first step in improving transparency and quality for consumers and clinicians
...
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| 3/25/2010- | Bioethics and professionalism in popular television medical dramas: New study sets the stage for debate over the use of popular programs to prompt classroom discussions among medical and nursing students. ...
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| 3/19/2010- | Johns Hopkins faculty star in NIH videos about genomics-related careers: Video interviews featuring faculty and staff from Johns Hopkins University debuted on the National Human Genome Research Institute's website on March 18. The independently produced videos are meant to inspire high school and college students to consi ...
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| 3/18/2010- | Patient Reactions to Confidentiality, Liability, and Financial Aspects of Informed Consent in Cardiology Research: Although the informed consent process is supposed to help potential research participants make informed and voluntary decisions about participating in research, little is known about how participants react to language in the informed consent document ...
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| 3/17/2010- | Stakeholder analysis for health research: Case studies from low- and middle-income countries: Summary
Objectives
Future Health Systems: Innovations for Equity (FHS) is working in six partner countries in Asia and Africa, focusing on strengthening the research–policy interface in relation to specific health system research projects. These pr ...
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| 3/11/2010- | The Line: 'A piece of my mind' JAMA vol 303(10), March 10, 2010. By Thomas D. Kirsch and Margaret R. Moon ...
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| 3/10/2010- | Evolving values in ethics and global health research: Background: Community-based participatory research (CBPR) is a growing approach to research yet its implementation does not come without challenges. Incorporating CBPR may be especially difficult for large academic medical institutions where research ...
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| 3/3/2010- | The Association of Provider Communication with Trust among Adults with Sickle Cell Disease: Abstract
Background
Adults with sickle cell disease often report poor interpersonal healthcare experiences, including poor communication with providers. However, the effect of these experiences on patient trust is unknown.
Objective
To determ ...
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| 3/3/2010- | Patient use of weight-management activities: A comparison of patient and physician assessments: Objective
Examine concordance between patient and physician assessments of patient self-reported use of weight-management activities.
Methods
Analysis of baseline data from a randomized controlled trial of patient and physician interventions to im ...
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| 3/1/2010- | Oversight of financial conflicts of interest in commercially sponsored research in academic and nonacademic settings: Abstract
BACKGROUND
Studies of conflicts of interest in clinical research have focused on academic centers, but most clinical research takes place in nonacademic settings.
OBJECTIVE
To compare oversight and management of investigators’ financ ...
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| 3/1/2010- | Disparity in physician perception of patients' adherence to medications by obesity status: Physician perception of medication adherence may alter prescribing patterns. Perception of patients has been linked to readily observable factors, such as race and age. Obesity shares a similar stigma to these factors in society. We hypothesized that ...
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| 2/19/2010- | Lacks story kick starts much-needed public conversation about informed consent, commercialization of human tissue samples: ...
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| 2/15/2010- | Helping Docs: A SIMPLE ACRONYM CAN HELP PHYSICIANS DECIDE WHETHER A PATIENT CAN MAKE HIS OWN MEDICAL DECISIONS, ELIZABETH TRACEY REPORTS ...
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| 2/12/2010- | 'Immortal cells', moral issues: Case of Henrietta Lacks shows need for ethical component in health care reform ...
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| 2/10/2010- | Let's get rational about health care 'rationing': By John Freeman
Baltimore Sun, February 8, 2010
Current medical practice is enormously expensive, often without clear long-term benefits. A few examples:
*End-of-life care at New York University averaged $105,000 per patient in the last two ...
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| 2/7/2010- | For Henrietta Lacks, immortality comes in a test tube: Pitt alum's book tells of a woman whose prolific cancer cells have been used in research for 60 years. Comments by Berman Institute Director, Ruth Faden ...
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| 2/5/2010- | Eliminating drug price differentials across government programmes in the USA: Federal agencies in the USA pay significantly different prices for the same prescription drugs because each agency uses a different approach to derive the payment rate. Because we do not identify any economic rationale or socially accepted moral rea ...
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| 2/4/2010- | Learning CURVES: An acronym for assessing patient decision-making capacity in emergencies: Physicians in training and bioethicists at Johns Hopkins have created an easy-to-remember checklist to help medical students and clinicians quickly assess a patient’s decision-making capacity in an emergency. ...
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| 1/19/2010- | Reasoning through rationing of end-of-life care: Johns Hopkins Berman Institute faculty member asks leaders to question "futile and expensive" care in terminally ill adults and infants ...
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| 1/4/2010- | Communications specialist joins Berman Institute: Michael Pena will serve as science writer and work with news media as part of the institute's Rapid Response Initiative. ...
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| 1/4/2010- | Denying care to illegal immigrants raises ethical concerns: Ruth Faden, Director, Johns Hopkins Berman Institute of Bioethics, discusses care for illegal immigrants. ...
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| 1/2/2010- | "We'll do this together": the role of the first person plural in fostering partnership in patient-physician relationships: artnership is integral to therapeutic relationships, yet few studies have examined partnership-fostering communication behaviors in the clinic setting. We conducted this study to better understand how statements in which physicians use the first pers ...
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| 12/19/2009- | Ancillary Care in Community-Based Public Health Intervention Research: Community-based public health intervention research in developing countries typically takes place not in clinics but in people's homes and other living spaces. Research subjects and their communities may lack adequate nutrition, clean water, sanitati ...
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| 12/18/2009- | Making Access to Flu Vaccine Happen: This week in an Op-Ed for the San Francisco Chronicle, my colleagues Ruth Karron, Ruth Faden, and I urged the US government to move quickly on their pledges to donate vaccine for developing countries in this pandemic season. Our call seems to have be ...
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| 12/16/2009- | U.S. should give away H1N1 swine flu vaccine: We recommend that the U.S. government and the governments of other wealthy countries immediately donate 10 percent of their H1N1 vaccine supply for the poorest countries, and state publicly when the donations will begin. Many developed countries can ...
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| 12/14/2009- | Expensive Cancer Drugs: This article compares the United Kingdom's and the United States' experiences with expensive cancer drugs to illustrate the challenges posed by new, extremely costly, medical technologies. ...
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| 12/8/2009- | Alternatives to national average income data as eligibility criteria for international subsidies: a social justice perspective: Current strategies to address global inequities in access to life-saving vaccines use averaged national income data to determine eligibility. While largely successful in the lowest income countries, we argue that this approach could lead to significa ...
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| 12/7/2009- | Now what? Six Hopkins scholars speculate on the promise and the shocks of the future: Six Hopkins scholars speculate on the promise and shocks of the future. Video footage of our round table conversation is included throughout the article below. To jump straight to the video, please visit our YouTube channel here. ...
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| 12/2/2009- | Adnan A. Hyder to lead Johns Hopkins Bloomberg School of Public Health Effort on Bloomberg's $125 million Global Road Safety Program: The Johns Hopkins Bloomberg School of Public Health’s International Injury Research Unit (IIRU) and Center for Injury Research and Policy today announced that Adnan A. Hyder, MD, PhD, MPH, associate professor with the Bloomberg School’s Department of ...
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| 12/1/2009- | Responding to requests from adult patients for neuroenhancements. : ...
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| 11/30/2009- | Navigating ethical quandaries in the field: Interview with Assistant Professor Maria Merritt ...
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| 11/18/2009- | Johns Hopkins-Fogarty African Bioethics Training Program -- University of Botswana Collaboration: ...
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| 11/10/2009- | Of mice and men: skin cells, stem cells and ethical uncertainties: The recent reports concerning the creation of live mice from induced pluripotent stem cells (iPSCs) suggest that it may be possible to overcome one of the many critical barriers to creating patient-specific stem cell therapies – the derivation of tru ...
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| 11/6/2009- | The More Things Change: The New NIH Guidelines on Human Stem Cell Research: ...
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| 11/5/2009- | For sale: Human eggs become a research commodity: ...
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| 11/2/2009- | Factors that influence institutional review board members' commitment to their role responsibilities: The article presents a study on the factors influencing the level of commitment of institutional review board (IRB) members towards their respective responsibilities. In this study, 26 IRB members from medical and public health schools in the mid-Atl ...
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| 10/30/2009- | Of Mice and Men: Stem Cells and Ethical Uncertainties: Press Release: Letter to editor - Regenerative Medicine ...
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| 10/29/2009- | Sickle Cell Disease in a 'Postracial' America: editorial ...
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| 10/29/2009- | A systematic review of barriers and interventions to improve appropriate use of therapies for sickle cell disease: A systematic review of barriers and interventions to improve appropriate use of therapies for sickle cell disease ...
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| 10/15/2009- | Public Perspectives on Informed Consent for Biobanking: Juli Murphy 1*, Joan Scott 1, David Kaufman 1, Gail Geller 1, Lisa LeRoy 2, Kathy Hudson 1 ...
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| 10/5/2009- | Second Wave Case Statement: ...
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| 10/5/2009- | Access to treatment in HIV prevention trials: perspectives from a South African community: South Africa • HIV/AIDS • research ethics • HIV trials • community perspective ...
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| 9/29/2009- | Pregnancy Is No Time to Refuse a Flu Shot: ...
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| 9/28/2009- | The second wave: Toward responsible inclusion of pregnant women in research: The second wave: Toward responsible inclusion of pregnant women in research ...
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| 9/28/2009- | Scientific and Ethical Issues Related to Deep Brain Stimulation for Disorders of Mood, Behavior and Thought: ...
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| 9/22/2009- | Stem Cell Research at Johns Hopkins: Safety & Ethics: How do we deal with the ethical and safety issues around human stem cell research and therapy? ...
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| 9/18/2009- | Physician Respect for Patients with Obesity: ...
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| 9/16/2009- | Teaching ethics to paediatrics residents: the centrality of the therapeutic alliance: ...
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| 9/15/2009- | Development and validation of the Family Decision-Making Self-Efficacy Scale: ...
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| 9/15/2009- | Everyday Ethics Issues in the Outpatient Clinical Practice of Pediatric Residents: ...
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| 8/31/2009- | Supporting Health Care Reform is the Right Thing to Do: ...
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| 8/27/2009- | Disclosing financial conflicts of interest to research participants may not be enough: ...
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| 8/26/2009- | Setting Priorities for Patient Safety: ...
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| 8/17/2009- | A moral obligation? Should the U.S. produce enough H1N1 flu vaccine to help developing countries?: ...
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| 8/14/2009- | What neither side will admit about health care 'rationing': ...
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| 8/11/2009- | Review: Social Justice: The Moral Foundations of Public Health and Health Policy: ...
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| 8/6/2009- | Advancing Ancillary Care in Developing Countries: Many studies have offered recommendations on how to improve ancillary care in clinical settings but few have examined the role this crucial care plays in public health research ...
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| 8/6/2009- | Virtual Colonoscopy: A Window Into the Challenges of Health Care Reform: Virtual Colonscopy ...
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| 7/30/2009- | The course and correlates of high hospital utilization in sickle cell disease: Evidence from a large, urban Medicaid managed care organization: ...
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| 7/19/2009- | Spirituality Research Study : Berman Institute faculty member, Daniel Finkelstein recently met with collaborators and consultants to finalize preparations for a spirituality research study. ...
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| 7/2/2009- | Pluripotent Stem Cell-Derived Gametes: Truth and (Potential) Consequences : Stem-Cell Dervied Gametes Facts and Bioethics Ethics ...
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| 6/29/2009- | Pregnancy and Pills : Berman Institute Director, Ruth Faden, joins colleagues Maggie Little and Anne Drapkin Lyerly in leading the Second Wave campaign to secure fair benefits from medical science for pregnant women. An article discussing the campaign, Pregnancy and Pill ...
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| 6/15/2009- | Neuroimaging in Psychiatry: Evaluating the Ethical Consequences for Patient Care : ...
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| 6/5/2009- | Categorizing Empirical Research in Bioethics : In the target article, Kon (2009) classifies empirical research in bioethics into four hierarchical categories: Lay of the Land, Ideal versus Reality, Improving Care, and Changing Ethical Norms. This attempt is not the first to categorize this growin ...
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| 5/28/2009- | What Works and What Doesn't: Berman Institute Director, Ruth Faden, interviewed about comparative effectiveness research by Jonathan Moreno , Senior Fellow, Center for American Progress
...
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| 5/10/2009- | A Custom Drug : When diseases like swine flu hit, pregnant women are especially at risk. ...
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| 5/2/2009- | Medicine on the Fringe: Stem Cell-Based Interventions in Advance of Evidence: Stem Cell-Based Interventions ...
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| 3/7/2009- | Moving from research ethics review to research ethics systems in low-income and middle-income countries: ...
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| 3/7/2009- | New Approach to Study Research Ethics Proposed: Low- and middle-income countries face complex challenges associated with the ethical conduct of scientific research and the protection of research participants ...
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