Research News

1/27/2012-	Congressional Letter: “Critical” to Include Pregnant Women in Medical Research: The Second Wave Consortium, co-founded by Johns Hopkins Berman Institute of Bioethics director Ruth Faden, has received support from members of Congress via a letter to HHS Secretary Kathleen Sebelius, urging regulations that encourage the inclusion ...
1/6/2012-	NEW MEDIA RELATIONS OFFICER AT THE BERMAN INSTITUTE OF BIOETHICS: ...
1/6/2012-	Ethical Issues Raised in Addressing the Needs of People With Serious Mental Disorders in Complex Emergencies : Recent manmade and natural disasters highlight weaknesses in the public health systems designed to protect populations from harm and minimize disruption of the social and built environments. Emergency planning and response efforts have, as a result, ...
1/3/2012-	Advanced Dementia: State of the Art and Priorities for the Next Decade: ...
12/22/2011-	Palliative Care For Extremely Premature Infants and Their Families: ...
12/15/2011-	Presidential Commission Calls For Better Oversight of Human Subjects Research: ...
12/15/2011-	Institute of Medicine Committee Chaired By Johns Hopkins Bioethicist Calls For an End to Most Research on Chimpanzees: ...
12/13/2011-	Media Advisory: IOM Panel Releasing Chimp Research Report, Chaired by JHU Bioethicist: The Institute of Medicine of the National Academies will hold a public briefing to release its report, "The Use of Chimpanzees in Biomedical and Behavioral Research: Assessing the Necessity," chaired by Berman Institute of Bioethics Deputy Director J ...
12/2/2011-	Bioethicist Ruth Faden To Receive Lifetime Achievement Award from PRIM&R: ...
11/23/2011-	Participants' Perceptions of Research Benefits in an African Genetic Epidemiology Study: Both the Council for International Organization of Medical Sciences and the Helsinki Declaration emphasize that the potential benefits of research should outweigh potential harms; consequently, some work has been conducted on participants' perception ...
11/3/2011-	Repeated Assessments of Informed Consent Comprehension among HIV-Infected Participants of a Three-Year Clinical Trial in Botswana : Informed consent (IC) has been an international standard for decades for the ethical conduct of clinical trials. Yet frequently study participants have incomplete understanding of key issues, a problem exacerbated by language barriers or lack of fami ...
11/1/2011-	Johns Hopkins Berman Institute Bioethicists Develop Free Online Ethics “Bootcamp” Course for Global Health Students and Trainees: Bioethicists at the Johns Hopkins Berman Institute of Bioethics and their colleagues in global health at Stanford University have launched a free online basic ethics course for trainees in global health programs. ...
11/1/2011-	Leonard Rubenstein Honored With Award for Peace: Len Rubenstein, a faculty member at the Johns Hopkins Berman Institute of Bioethics, has been honored with the 2011 Sidel-Levy Award for Peace by the American Public Health Association. ...
10/31/2011-	Promoting Justice in Stem Cell Intellectual Property: this paper focuses exclusively on intellectual property rights and models of innovation policy in the context of stem cell science. It is not that the issues themselves are unique in this context, but rather that there are a series of factors that ma ...
10/11/2011-	Johns Hopkins Bioethicist Receives Lifetime Achievement Award For Work On Social Justice Issues In Health Policy: Ruth Faden, Ph.D., MPH, founding director of the Johns Hopkins Berman Institute of Bioethics, and an authority on research ethics and social justice considerations in health policy, is the recipient of this year’s Lifetime Achievement Award given by ...
9/30/2011-	Traditional Expectations Versus US Realities: First- and Second-Generation Asian Indian Perspectives on End-of-Life Care ...
9/30/2011-	Berman Institute Faculty Member, Joe Carrese, to Receive 2011 ASBH Presidential Citation Award: ...
9/26/2011-	NHGRI funds return of results studies, forms expert consortium: Researchers receiving funding include the Berman Institute’s Michelle Lewis. This funding will allow a careful examination of newborn screening and the ethical and legal responsibilities of the different parties involved to return research results to ...
9/7/2011-	Contagion: Reminder That Public Health System Must Be Prepared for Lethal Disease Outbreak: Infectious disease and disaster preparedness experts at Johns Hopkins Medicine say the premise of the soon-to-be-released Hollywood movie Contagion, in which a lethal airborne virus spreads quickly around the globe, is realistic and should serve as a ...
8/17/2011-	A Social Justice Framework for Health and Science Policy: Cambridge Quarterly of Healthcare Ethics, Vol 20(4), Special section: from informed consent to no consent? ...
8/9/2011-	Meta-Analysis Finds High Accuracy for Noninvasive Prenatal Sex Determination: Fetal sex can be determined reliably with a non-invasive genetic test as early as 7 weeks into a pregnancy, according to a new meta-analysis published this week in the Journal of the American Medical Association ...
8/9/2011-	Informed Consent Documents Called Too Long and Complex: A study says clinical trial forms that run 20-plus pages are difficult to understand, and that medical liability fears may be prompting too many warnings. ...
8/3/2011-	Johns Hopkins Law Scholar Says Human Rights Violations Undermine Medical Professionalism, Urges Collective Outcry: ...
7/15/2011-	Johns Hopkins Study Finds Flaws in Informed Consent Docs: INFORMED-CONSENT DOCUMENTS SHOULD BE SHORTENED, SIMPLIFIED, STUDY BY JOHNS HOPKINS BIOETHICISTS CONFIRMS ...
7/6/2011-	How Patients View Probiotics: Findings From a Multicenter Study of Patients With Inflammatory Bowel Disease and Irritable Bowel ...
6/20/2011-	When a serious adverse event in research occurs, how do other volunteers react?: Serious adverse events in research involving healthy volunteers are rare, but their impact on other volunteers is unknown. ...
6/20/2011-	Everyday ethics in internal medicine resident clinic: An opportunity to teach: Being a good doctor requires competency in ethics. Accordingly, ethics education during residency training is important. We studied the everyday ethics-related issues (i.e. ordinary ethics issues commonly faced) that internal medical residents encoun ...
6/20/2011-	Live Case Demonstrations: Attitudes and Ethical Implications for Practice: Live case demonstrations (LCDs) are now prevalent in medical education courses despite ethical concerns including that they may expose patients to undue risk. However, there are limited data regarding many aspects of LCDs to help inform policies and ...
6/10/2011-	Are there adverse consequences of quizzing during informed consent for HIV research?: While quizzing during informed consent for research to ensure understanding has become commonplace, it is unclear whether the quizzing itself is problematic for potential participants. In this study, we address this issue in a multinational HIV preve ...
6/10/2011-	Guidelines for global health training: In 2010 such questions and concerns led to the formation of the Working Group on Ethics Guidelines for Global Health Training (WEIGHT), which recently published ethics and best-practice guidelines for training experiences in global health.1 To help r ...
6/7/2011-	Cynda Rushton Promoted to Full Professor at Hopkins Nursing: Rushton, an internationally recognized expert in bioethics and palliative care, has been promoted to the rank of Professor. ...
6/2/2011-	Bioethics Week in Pictures and Video: Video of the Berman Institute's May 11 dedication ceremony is now on YouTube. Pictures from Bioethics Week are on Facebook. ...
5/23/2011-	More Focus Needed on Mental Health Triage in Disaster Preparedness: Berman Institute bioethicists say disaster-response planning has overlooked the special needs of people who suffer from pre-existing, serious mental conditions. ...
5/9/2011-	Behavior on Trial: Behavior change may be our best hope for stemming the HIV/AIDS epidemic. Why is it so hard to evaluate the interventions? ...
5/4/2011-	Berman Institute Debuts New Campus Home During Bioethics Week at Johns Hopkins: University-wide commemoration of "Bioethics Week" will be May 9-13 and include special guests, events and the dedication of Deering Hall. ...
5/3/2011-	Cardiovascular Patients' Perspectives on Guilt as a Motivational Tool: Current research supports the notion that lifestyle choices influence cardiovascular health, but to what extent specific emotions play is undefined. Now, new research from the University of Pennsylvania School of Medicine has revealed the role that ...
5/2/2011-	Johns Hopkins Berman Institute Faculty in the American Journal of Bioethics: AJOB 11(5) May 2011 "Dealing With the Long-Term Social Implications of Research" Alan Fleischman, Carol Levine, Lisa Eckenweiler, Christine Grady, Dale Hammerschmidt, Jeremy Sugarman "Reframing the Framework: Toward Fair Inclusion of Pregnant ...
4/12/2011-	Challenges for Mental Health Services Raised by Disaster Preparedness: Mapping the ethical and therapeutic terrain. By Peter Rabins, Nancy Kass, Lainie Rutkow, Jon Vernick, and James Hodge. Published online ahead of print, in Biosecurity and Bioterrorism ...
4/8/2011-	Photos: Robert H. Levi Leadership Symposium - Altered States of Care in Disaster Settings: Following a public forum held at the Bloomberg School of Public Health on April 7, a deeper examination of the issues was conducted at the Berman Institute's new home, Deering Hall. ...
4/7/2011-	What value, and price, to place on new drugs? : Challenges facing proposed British approach bear watching, say Johns Hopkins bioethicists ...
3/28/2011-	Most States Unclear About Storage, Use of Babies' Blood Samples, New Study Finds : Government-sponsored analysis led by Johns Hopkins bioethics scholar published today in Pediatrics ...
3/16/2011-	Quality, Safety, and Institutional Review Boards: Navigating Ethics and Oversight in Applied Health Systems Research: Tracking quality in health care is a moral mandate. 1 It is also required by state statutes 2 and payers 3 and for hospital accreditation. 4 Only recently has rigorous research been recognized as a critical and often missing piece o ...
3/11/2011-	Berman Institute's Joseph Ali one of Baltimore's "10 People to Watch Under 30": Joseph Ali, coordinator of the Berman Institute's Fogarty African Bioethics Training Program, is featured in the tabloid's second annual "10 People to Watch Under 30." The 29-year-old resident of northeast Baltimore has been with the institute since ...
3/4/2011-	The role of cultural distance between patient and provider in explaining racial/ethnic disparities in HIV care: We sought to evaluate whether cultural distance between patients and providers was associated with quality of care for people living with HIV/AIDS, and whether cultural distance helped explain racial/ethnic disparities in HIV care. ...
2/18/2011-	Seminal Successes In Pediatric Oncology Linked To Historically Tolerant Regulatory Oversight, Collaboration And Hope: Relatively lenient regulations regarding human subjects protections in the 1950s played an important role in pediatric oncology being the first field of medicine in which doctors simultaneously treated patients and carried out clinical research, acco ...
2/15/2011-	"Reduction of Childhood Mortality Through Millennium, Development Goal No. 4": ... will not be maximised unless injury prevention is integrated into the overall plan. Millennium development goal 4 aims to reduce mortality in children under 5 years by two thirds between 1990 and 2015. Unfortunately, as of 2010, among the 67 c ...
2/14/2011-	Drs. Sugarman and Goodman featured in Feb. 12 NYTimes: Core faculty members Jeremy Sugarman and Steven Goodman are among various experts quoted in the Feb. 12 article "Risk and Reward in Utero." ...
2/10/2011-	Access to Stem Cells and Data: Persons, Property Rights, and Scientific Progress: Many fields have struggled to develop strategies, policies, or structures to optimally manage data, materials, and intellectual property rights (IPRs). There is growing recognition that the field of stem cell science, in part because of its complex I ...
2/10/2011-	Scientists Warns Against Stifling Effect of Widespread Patenting in Stem Cell Field: In an opinion piece published today in the journal Science, a team of scholars led by a Johns Hopkins bioethicist urges the scientific community to act collectively to stem the negative effects of patenting and privatizing of stem cell lines, data an ...
1/31/2011-	Patient reactions to personalized medicine vignettes: An experimental design: Translational investigation on personalized medicine is in its infancy. Exploratory studies reveal attitudinal barriers to "race-based medicine" and cautious optimism regarding genetically personalized medicine. This study describes patient responses ...
1/28/2011-	Barriers to and Facilitators of Postpartum Follow-Up Care in Women with Recent Gestational Diabetes Mellitus: A Qualitative Study: Women with a history of gestational diabetes mellitus (GDM) have an increased risk of developing type 2 diabetes (T2DM) but often do not return for follow-up care. We explored barriers to and facilitators of postpartum follow-up care in women with re ...
1/25/2011-	Apomediation and Ancillary Care: Researchers’ Responsibilities in Health Related Online Communities: This paper examines the responsibilities of researchers to provide ancillary care – care beyond that necessary to assure subject safety and scientific validity – to the subjects of their investigations into health-related online communities. The ...
1/25/2011-	Johns Hopkins Epidemiologist Named to Patient-Centered Outcomes Research Institute Committee: Steven Goodman, M.D., M.H.S., Ph.D., a professor of oncology, epidemiology and biostatistics at the Johns Hopkins University, has been appointed to a new government institute committee designed to guide standards for accurately comparing medical trea ...
1/24/2011-	International Consortium Issues Guidelines to Counter Rush To Patent and Proprietary Restrictions in Stem Cell Research: Hinxton Group, formed by Johns Hopkins bioethicists, says progress depends on openness. ...
1/18/2011-	Conjectural Mixed Motives: AB is a seventy-four-year-old man with longstanding chronic kidney disease related to diabetes. Six months ago, his kidney disease progressed, and he began hemodialysis three times weekly. Since then, he has been hospitalized five times for various p ...
1/13/2011-	Ignoring mental illness, until it's too late: Tucson tragedy could pave way for a discussion of getting treatment for those who need it ...
1/8/2011-	Presidential Bioethics Commission Names Johns Hopkins Bioethicists To Staff Positions: The Presidential Commission for the Study of Bioethical Issues has appointed two faculty experts at the Johns Hopkins Berman Institute of Bioethics to senior staff positions ...
1/5/2011-	'Some Worms Are Best Left in the Can' -- Should You Hide Medical Errors?: No one likes to admit to being wrong, or to spilling the beans in delicate situations. For on-the-job physicians, especially, the consequences of making an error or speaking out of turn -- also known as violating HIPAA rules -- can range from nonexis ...
1/3/2011-	A Video-Intervention to Improve Clinician Attitudes Toward Patients with Sickle Cell Disease: The Results of a Randomized Experiment: BACKGROUND: Clinician attitudes toward patients are associated with variability in the quality of health care. Attitudes are typically considered difficult to change, and few interventions have attempted to do so. Negative attitudes toward adults wit ...
12/17/2010-	Johns Hopkins Faculty Highly Value Involvement Of Nearby Urban Community For Improving Research, Survey Finds: A survey conducted by Johns Hopkins faculty found strong support among their peers for working more closely with the minority, inner-city community that surrounds the institution. Overall, 91 percent of faculty responders said closer ties make resear ...
12/16/2010-	The Presidential Commission for the Study of Bioethical Issues delivers its report on synthetic biology to President Obama: In first report, panel identifies risks and benefits of pioneering research that could lead to new vaccines, drugs and biofuels; develops framework to evaluate emerging technologies Citing uncertainty about risks, Commission urges enhanced coordi ...
12/15/2010-	Individual income and falls among the elderly in Latin America: The burden of falls amongst the elderly raises important public health concerns. Empirical evidence suggests that macroeconomic growth may not be sufficient to reduce mortality and morbidity from injuries among the elderly. This paper consolidates ma ...
12/7/2010-	Faculty Beliefs, Perceptions, and Level of Community Involvement in Their Research: A Survey at One Urban Academic Institution : Journal of Empirical Research on Human Research Ethics 2010 December Volume 5 Number 4, Pages 65-76 ...
12/3/2010-	Prevention of violence against children: A framework for progress in low- and middle-income countries : Journal of Public Health Policy. Advance online Publication: 25 Nov 2010 ...
12/3/2010-	Examining the characteristics and beliefs of hydroxyurea users and nonusers among adults with sickle cell disease: American Journal of Hematology, Early View. Article first published online: 29 Nov 2010 ...
12/1/2010-	Developing ethics guidance for HIV prevention research: the HIV Prevention Trials Network approach: Journal of Medical Ethics Volume 36, Issue 12 December 2010, pages 810-815 ...
11/30/2010-	New guidelines published for ethical global health training: With the growth in global health training programs around the world, it has become increasingly vital to ensure these programs are ethical and accomplishing their intended goals: to improve global health and not become part of the problem. ...
11/26/2010-	A Rose by Any Other Name: Pain Contracts/Agreements: American Journal of Bioethics Volume 10, Issue 11 November 2010 , pages 5 - 12 Pain is the most common reason people seek medical advice. It is estimated that more than 50 million Americans suffer from chronic pain, e.g., nonmalignant, benign, or no ...
11/26/2010-	Problematic Hospital Experiences among Adult Patients with Sickle Cell Disease: Adults with sickle cell disease (SCD) have often reported difficulties obtaining care during vaso-occlusive crisis (VOC) in qualitative studies. Methods. We measured the experiences of 45 SCD patients who received in-hospital care for VOC using the P ...
11/23/2010-	Bioethics Exchange: A Newsletter from the Johns Hopkins-Fogarty African Bioethics Training Program: Vol. 5(1), Nov. 2010 available now ...
11/19/2010-	Suffering in Silence: 100 Years of Sickle Cell Disease: Carlton Haywood, Jr, PhD, MA speaking about bioethics and sickle cell disease. ...
11/15/2010-	Director Ruth Faden interviewed after conference in Estonia : A television news program featured an interview with Berman Institute Director Ruth Faden after her presentation at an international conference in Estonia that was held Nov. 4 to 6 at the University of Tartu. The conference's theme was "From info ...
11/8/2010-	"Reflections on Clinical Ethics" by Dr. John Freeman: Moral philosophies have rarely helped as I work with families to make the best decision for their child, for the family and for society. What is the proper role for the physician? I have found over a long career as a pediatric neurologist that “benig ...
10/22/2010-	Book talk by Profs. Mathews and Bok on YouTube: The YouTube channel for the Johns Hopkins Berman Institute of Bioethics now features a short video clip of a book talk by institute faculty members Debra Mathews and Hilary Bok on Oct. 5. ...
10/21/2010-	Updated text Methods in Medical Ethics debuts at annual bioethics gathering: A revised and updated edition of the widely used Methods in Medical Ethics, regarded as one of the most accessible and comprehensive texts on the research methods that contribute to the field, debuted today at the annual meeting of the American Socie ...
10/13/2010-	Challenges To Effective Research in Acute Trauma Resuscitation: Consent and Endpoints: Selection of study endpoints is one of the most important decisions in the design of effective clinical trials. Late mortality (e.g. 28 days) is an unambiguous endpoint, accepted by regulatory agencies, but it is viewed as problematic among researche ...
10/13/2010-	Web 2.0 and Internet Social Networking: A New tool for Disaster Management? - Lessons from Taiwan: Internet social networking tools and the emerging web 2.0 technologies are providing a new way for web users and health workers in information sharing and knowledge dissemination. Based on the characters of immediate, two-way and large scale of impac ...
10/11/2010-	Dr. Jeremy Sugarman Elected to the Institute of Medicine: Jeremy Sugarman, M.D., M.P.H., M.A., the Harvey M. Meyerhoff Professor of Bioethics and Medicine at the Berman Institute of Bioethics and the Department of Medicine at Johns Hopkins University, has been elected to the Institute of Medicine (IOM), an ...
10/11/2010-	A Field Training Guide for Human Subjects Research Ethics: We have produced a Field Training Guide for Human Subjects Research Ethics, which is freely available to the public. In this article we address how to identify field training needs and meet high standards of research ethics at every level of human su ...
10/1/2010-	Advisory: Johns Hopkins Bioethicist Comments On Guatemalan Venereal-Disease Experiments: In response to reports today, bioethicist and social justice scholar Ruth R. Faden, says the venereal-disease experiments on Guatemalans in the 1940s—led by a U.S. government physician who later joined the infamous Tuskegee study in Alabama—were prof ...
9/30/2010-	Information on the 1946-1948 United States Public Health Service STD Inoculation Study: While conducting historical research on the Tuskegee Study of Untreated Syphilis, Professor Susan Reverby of Wellesley College recently discovered the archived papers of the late Dr. John Cutler, a U.S. Public Health Service medical officer and a Tus ...
9/27/2010-	Association between economic growth and injury mortality among seniors in Colombia: Injuries among seniors are recognised as an important public health problem not only in developed countries but also in middle-income countries. There is ample epidemiological literature that relates economic growth to the reduction of infectious and ...
9/14/2010-	Challenges in primary care relationships: Seeing it from both sides : This qualitative study explored perspectives of primary care providers and patients in challenging relationships. ...
9/7/2010-	Religious coping and hospital admissions among adults with sickle cell disease : Although a well-established literature implicates religiosity as a central element of the African American experience, little is known about how individuals from this group utilize religion to cope with specific health-related stressors. The present ...
9/3/2010-	Socioeconomic impact of road traffic injuries in West Africa: exploratory data from Nigeria: Road traffic injuries (RTIs) are increasingly contributing to the burden of disease in sub-Saharan Africa, yet little is known about the economic consequences and disability associated with them. ...
8/26/2010-	Ethics and the standards of prevention in HIV prevention trials: Correspondence in AIDS, the official journal of the international AIDS society. 10 September 2010, 24(14), p 2298-99. By Jeremy Sugarman and William Grace ...
8/26/2010-	Genetics and Public Policy Center to study genetic researchers’ views on their work: The National Human Genome Research Institute (NHGRI) has awarded the Genetics and Public Policy Center a two-year grant to examine the views and practices of genetic researchers who collect and study banked human DNA. The center will work in collabor ...
8/25/2010-	The burden of emergency department use for sickle-cell disease: An analysis of the national emergency department sample database: It is estimated that there are 100,000 people living with sickle-cell disease (SCD) in the United States [1]. The most common manifestation of SCD is vaso-occlusive crisis, which is characterized by intermittent, unexpected episodes of excruciating p ...
8/19/2010-	The Ethical Review of Health Care Quality Improvement Initiatives: Findings from the Field: Questions have been raised about whether and how health care quality improvement (QI) initiatives ought to be reviewed to address possible ethical issues associated with them. These questions have focused primarily on whether some QI initiatives meet ...
8/11/2010-	Berman Institute scholar calls for consistent regulation of direct-to-consumer genetic tests: An opinion piece by a legal scholar from the Johns Hopkins Berman Institute of Bioethics in this week’s issue of Nature calls for the Food and Drug Administration to regulate all health-related genetic tests — whether available directly to consumers ...
8/6/2010-	Carlton Haywood Jr. awarded grant to study patients' opinions of 'opioid agreements': The Berman Institute’s Carlton Haywood, Jr. has been awarded $20,000 by the Blaustein Pain Research Fund to study how patients with sickle cell disease feel when caretakers ask them to agree to certain terms prior to receiving opioids for pain manage ...
8/4/2010-	Bioethicist's talks commemorate centennial of sickle cell disease: Carlton Haywood Jr., also a sickle cell patient, focuses on the role of race in the doctor-patient relationship ...
8/2/2010-	Beyond 'compliance': To contribute data to conceptual explorations of the role of institutional culture in promoting research ethics and integrity. Method: The authors highlight relevant themes that emerged from a multimodal needs assessment conducted under the Johns Hop ...
7/30/2010-	Genetics and Public Policy Center Director to Lead Genetics Education Organization for Health Professionals: Joan Scott, director of the Genetics and Public Policy Center (GPPC), will leave Johns Hopkins University to become executive director of the National Coalition for Health Professional Education in Genetics (NCHPEG), effective Sept. 7. ...
7/22/2010-	Assessing the Readability of Non-English-Language Consent Forms: The Case of Kiswahili for Research Conducted in Kenya: A large body of literature supports the notion that the language used in informed consent forms is not comprehensible to most research participants. Creating comprehensible informed consent forms for international research presents a further challeng ...
7/9/2010-	Hopkins faculty lead development of report to FDA on ethical, scientific issues related to 'post-market' clinical trials: Amid growing concerns about clinical trials for drugs that have been approved by the F.D.A. but are later linked to serious health risks, an independent committee at the Institute of Medicine led by two professors from Johns Hopkins University has de ...
6/29/2010-	Reflections on Governance Models for the Clinical Translation of Stem Cells: Governance models for the oversight of human embryonic stem cell research have been proposed which mirror in large part familiar oversight mechanisms for research with human subjects and non-human animals. While such models are in principle readily e ...
6/26/2010-	Trust in physicians and racial disparities in HIV care: Mistrust among African Americans is often considered a potential source of racial disparities in HIV care. We sought to determine whether greater trust in one's provider among African-American patients mitigates racial disparities. ...
6/25/2010-	The Global Burden of Unintentional Injuries and an Agenda for Progress: According to the World Health Organization, unintentional injuries were responsible for over 3.9 million deaths and over 138 million disability-adjusted life-years in 2004, with over 90% of those occurring in low- and middle-income countries (LMIC). ...
6/18/2010-	Update in palliative medicine: This update reviews hospice and palliative medicine articles published between January 1, 2008 and December 31, 2008. ...
6/18/2010-	Berman Institute scholar calls for a new legal, ethical framework for research with human tissue specimens: A lawyer and researcher at the Johns Hopkins Berman Institute of Bioethics says a new legal and ethical framework needs to be placed around the donation and banking of human biological material, one that would more clearly define the terms of the mat ...
6/16/2010-	Child supervision practices for drowning prevention in rural Bangladesh: A pilot study of supervision tools ...
6/16/2010-	National policy-makers speak out: are researchers giving them what they need?: The objective of this empirical study was to understand the perspectives and attitudes of policy-makers towards the use and impact of research in the health sector in low- and middle-income countries ...
6/10/2010-	Hospital self-discharge among adults with sickle-cell disease: Associations with trust and interpersonal experiences with care ...
6/8/2010-	Bioethicists examine trust toward physicians among adults with sickle cell disease: Faculty at the Johns Hopkins Berman Institute of Bioethics have published a study that shows, among adults with sickle cell disease, that unsatisfactory interactions with health-care providers in the past affect their trust in the medical profession ...
6/8/2010-	Bioethicists examine ethical oversight in 'quality-improvement' initiatives: New findings from Johns Hopkins suggest that most quality-improvement (QI) initiatives in U.S. hospitals are reviewed internally before they are conducted, but there is not routine consideration of the ethical issues associated with them. ...
6/3/2010-	Berman Institute Faculty to Lead FDA-Sponsored Examination of Ethical, Scientific Issues in Drug-Safety Studies: The director and a core faculty member of the Johns Hopkins Berman Institute of Bioethics have been appointed co-chairs of an Institute of Medicine committee that will evaluate the scientific and ethical issues involved in studies of drug safety afte ...
6/2/2010-	An absence of evidence in 'evidence-based rulemaking': Open peer commentary by Jason Gerson and Steven Goodman on 'The case for evidence-based rulemaking in human subjects research', AJOB 10(6) June 2010 ...
5/28/2010-	Bioethicists to develop model for providing care to research subjects in low-resource communities: The National Institutes of Health has awarded a grant to investigators at the Johns Hopkins Berman Institute of Bioethics to study obligations researchers may have to provide ancillary health care unrelated to their study while working in impoverishe ...
5/24/2010-	Drugstore Genetic Testing: Joan Scott, Director of Johns Hopkins Berman Insitute's Genetics and Public Policy Center, discusses direct-to-consumer genetic test kits. ...
5/11/2010-	Tweeting Science and Ethics: Social Media as a Tool for Constructive Public EngagementOpen Peer Commentary - American Journal of Bioethics ...
4/30/2010-	Relevant content for a patient-reported outcomes questionnaire for use in oncology clinical practice: Purpose To investigate relevant patient-reported outcome (PRO) domains for oncology clinical practice. Methods We conducted cross-sectional semi-structured telephone interviews with patients with breast and prostate cancer and clinicians. Usin ...
4/29/2010-	Sickle cell disease in the United States: The past 100 years since James Herrick's first description of sickle cell disease in the United States have been characterized by the gradual development of management strategies. We review the progress in sickle cell disease management in the United ...
4/16/2010-	Stanford Encyclopedia of Philosophy: Public Health Ethics: New Entry: "Public Health Ethics" by Ruth Faden and Sirine Shebaya ...
4/15/2010-	What keeps you up at night?: Purpose: To explore specific patient care experiences that genetics professionals associate with distress and the emotions engendered by those experiences. ...
4/5/2010-	Weight-based stigma and physician bias: AMA Journal of Ethics Virtual Mentor. Clinical cases. Commentary by Lawrence Cheskin, MD, Scott Kahan, MD, MPH, Gail Geller, ScD, MHS ...
4/2/2010-	What Matters in Health Disparities Education—Changing Hearts or Minds?: All medical educators face this question when planning curricula and in the daily course of teaching: “Is it enough to give our students the cognitive tools they need to function effectively, in the form of knowledge or skills, or should we also focu ...
4/1/2010-	Long-term effectiveness of patient-centered training in cultural competence:: Purpose: To determine whether the effects of a patient-centered cultural competence curriculum could be sustained for one year. ...
3/31/2010-	Toward definitive trials and improved outcomes of cardiac arrest: Editorial: published online may 29, 2010. Circulation. By Myron L. Weisfeldt, Jeremy Sugarman and Karen Bandeen-Roche ...
3/29/2010-	The Experiences of Children Enrolled in Pediatric Oncology Research: Implications for Assent: Most children with cancer enroll in clinical research trials. Whenever possible, children must provide their assent before enrolling in research studies. We studied what children aged 7 to 18 with cancer understand about research, their research-rela ...
3/26/2010-	Focus On: Direct-to-Consumer Genetic Tests: Ethically informed decision-making to be aided by public database Creation of Genetic Test Registry will be an important first step in improving transparency and quality for consumers and clinicians ...
3/25/2010-	Bioethics and professionalism in popular television medical dramas: New study sets the stage for debate over the use of popular programs to prompt classroom discussions among medical and nursing students. ...
3/19/2010-	Johns Hopkins faculty star in NIH videos about genomics-related careers: Video interviews featuring faculty and staff from Johns Hopkins University debuted on the National Human Genome Research Institute's website on March 18. The independently produced videos are meant to inspire high school and college students to consi ...
3/18/2010-	Patient Reactions to Confidentiality, Liability, and Financial Aspects of Informed Consent in Cardiology Research: Although the informed consent process is supposed to help potential research participants make informed and voluntary decisions about participating in research, little is known about how participants react to language in the informed consent document ...
3/17/2010-	Stakeholder analysis for health research: Case studies from low- and middle-income countries: Summary Objectives Future Health Systems: Innovations for Equity (FHS) is working in six partner countries in Asia and Africa, focusing on strengthening the research–policy interface in relation to specific health system research projects. These pr ...
3/11/2010-	The Line: 'A piece of my mind' JAMA vol 303(10), March 10, 2010. By Thomas D. Kirsch and Margaret R. Moon ...
3/10/2010-	Evolving values in ethics and global health research: Background: Community-based participatory research (CBPR) is a growing approach to research yet its implementation does not come without challenges. Incorporating CBPR may be especially difficult for large academic medical institutions where research ...
3/3/2010-	Patient use of weight-management activities: A comparison of patient and physician assessments: Objective Examine concordance between patient and physician assessments of patient self-reported use of weight-management activities. Methods Analysis of baseline data from a randomized controlled trial of patient and physician interventions to im ...
3/3/2010-	The Association of Provider Communication with Trust among Adults with Sickle Cell Disease: Abstract Background Adults with sickle cell disease often report poor interpersonal healthcare experiences, including poor communication with providers. However, the effect of these experiences on patient trust is unknown. Objective To determ ...
3/1/2010-	Oversight of financial conflicts of interest in commercially sponsored research in academic and nonacademic settings: Abstract BACKGROUND Studies of conflicts of interest in clinical research have focused on academic centers, but most clinical research takes place in nonacademic settings. OBJECTIVE To compare oversight and management of investigators’ financ ...
3/1/2010-	Disparity in physician perception of patients' adherence to medications by obesity status: Physician perception of medication adherence may alter prescribing patterns. Perception of patients has been linked to readily observable factors, such as race and age. Obesity shares a similar stigma to these factors in society. We hypothesized that ...
2/19/2010-	Lacks story kick starts much-needed public conversation about informed consent, commercialization of human tissue samples: ...
2/15/2010-	Helping Docs: A SIMPLE ACRONYM CAN HELP PHYSICIANS DECIDE WHETHER A PATIENT CAN MAKE HIS OWN MEDICAL DECISIONS, ELIZABETH TRACEY REPORTS ...
2/12/2010-	'Immortal cells', moral issues: Case of Henrietta Lacks shows need for ethical component in health care reform ...
2/10/2010-	Let's get rational about health care 'rationing': By John Freeman Baltimore Sun, February 8, 2010 Current medical practice is enormously expensive, often without clear long-term benefits. A few examples: *End-of-life care at New York University averaged $105,000 per patient in the last two ...
2/7/2010-	For Henrietta Lacks, immortality comes in a test tube: Pitt alum's book tells of a woman whose prolific cancer cells have been used in research for 60 years. Comments by Berman Institute Director, Ruth Faden ...
2/5/2010-	Eliminating drug price differentials across government programmes in the USA: Federal agencies in the USA pay significantly different prices for the same prescription drugs because each agency uses a different approach to derive the payment rate. Because we do not identify any economic rationale or socially accepted moral rea ...
2/4/2010-	Learning CURVES: An acronym for assessing patient decision-making capacity in emergencies: Physicians in training and bioethicists at Johns Hopkins have created an easy-to-remember checklist to help medical students and clinicians quickly assess a patient’s decision-making capacity in an emergency. ...
1/19/2010-	Reasoning through rationing of end-of-life care: Johns Hopkins Berman Institute faculty member asks leaders to question "futile and expensive" care in terminally ill adults and infants ...
1/4/2010-	Communications specialist joins Berman Institute: Michael Pena will serve as science writer and work with news media as part of the institute's Rapid Response Initiative. ...
1/4/2010-	Denying care to illegal immigrants raises ethical concerns: Ruth Faden, Director, Johns Hopkins Berman Institute of Bioethics, discusses care for illegal immigrants. ...
1/2/2010-	"We'll do this together": the role of the first person plural in fostering partnership in patient-physician relationships: artnership is integral to therapeutic relationships, yet few studies have examined partnership-fostering communication behaviors in the clinic setting. We conducted this study to better understand how statements in which physicians use the first pers ...
12/19/2009-	Ancillary Care in Community-Based Public Health Intervention Research: Community-based public health intervention research in developing countries typically takes place not in clinics but in people's homes and other living spaces. Research subjects and their communities may lack adequate nutrition, clean water, sanitati ...
12/18/2009-	Making Access to Flu Vaccine Happen: This week in an Op-Ed for the San Francisco Chronicle, my colleagues Ruth Karron, Ruth Faden, and I urged the US government to move quickly on their pledges to donate vaccine for developing countries in this pandemic season. Our call seems to have be ...
12/16/2009-	U.S. should give away H1N1 swine flu vaccine: We recommend that the U.S. government and the governments of other wealthy countries immediately donate 10 percent of their H1N1 vaccine supply for the poorest countries, and state publicly when the donations will begin. Many developed countries can ...
12/14/2009-	Expensive Cancer Drugs: This article compares the United Kingdom's and the United States' experiences with expensive cancer drugs to illustrate the challenges posed by new, extremely costly, medical technologies. ...
12/8/2009-	Alternatives to national average income data as eligibility criteria for international subsidies: a social justice perspective: Current strategies to address global inequities in access to life-saving vaccines use averaged national income data to determine eligibility. While largely successful in the lowest income countries, we argue that this approach could lead to significa ...
12/7/2009-	Now what? Six Hopkins scholars speculate on the promise and the shocks of the future: Six Hopkins scholars speculate on the promise and shocks of the future. Video footage of our round table conversation is included throughout the article below. To jump straight to the video, please visit our YouTube channel here. ...
12/2/2009-	Adnan A. Hyder to lead Johns Hopkins Bloomberg School of Public Health Effort on Bloomberg's $125 million Global Road Safety Program: The Johns Hopkins Bloomberg School of Public Health’s International Injury Research Unit (IIRU) and Center for Injury Research and Policy today announced that Adnan A. Hyder, MD, PhD, MPH, associate professor with the Bloomberg School’s Department of ...
12/1/2009-	Responding to requests from adult patients for neuroenhancements. : ...
11/30/2009-	Navigating ethical quandaries in the field: Interview with Assistant Professor Maria Merritt ...
11/18/2009-	Johns Hopkins-Fogarty African Bioethics Training Program -- University of Botswana Collaboration: ...
11/10/2009-	Of mice and men: skin cells, stem cells and ethical uncertainties: The recent reports concerning the creation of live mice from induced pluripotent stem cells (iPSCs) suggest that it may be possible to overcome one of the many critical barriers to creating patient-specific stem cell therapies – the derivation of tru ...
11/6/2009-	The More Things Change: The New NIH Guidelines on Human Stem Cell Research: ...
11/5/2009-	For sale: Human eggs become a research commodity: ...
11/2/2009-	Factors that influence institutional review board members' commitment to their role responsibilities: The article presents a study on the factors influencing the level of commitment of institutional review board (IRB) members towards their respective responsibilities. In this study, 26 IRB members from medical and public health schools in the mid-Atl ...
10/30/2009-	Of Mice and Men: Stem Cells and Ethical Uncertainties: Press Release: Letter to editor - Regenerative Medicine ...
10/29/2009-	Sickle Cell Disease in a 'Postracial' America: editorial ...
10/29/2009-	A systematic review of barriers and interventions to improve appropriate use of therapies for sickle cell disease: A systematic review of barriers and interventions to improve appropriate use of therapies for sickle cell disease ...
10/15/2009-	Public Perspectives on Informed Consent for Biobanking: Juli Murphy 1*, Joan Scott 1, David Kaufman 1, Gail Geller 1, Lisa LeRoy 2, Kathy Hudson 1 ...
10/5/2009-	Access to treatment in HIV prevention trials: perspectives from a South African community: South Africa • HIV/AIDS • research ethics • HIV trials • community perspective ...
10/5/2009-	Second Wave Case Statement: ...
9/29/2009-	Pregnancy Is No Time to Refuse a Flu Shot: ...
9/28/2009-	Scientific and Ethical Issues Related to Deep Brain Stimulation for Disorders of Mood, Behavior and Thought: ...
9/28/2009-	The second wave: Toward responsible inclusion of pregnant women in research: The second wave: Toward responsible inclusion of pregnant women in research ...
9/22/2009-	Stem Cell Research at Johns Hopkins: Safety & Ethics: How do we deal with the ethical and safety issues around human stem cell research and therapy? ...
9/18/2009-	Physician Respect for Patients with Obesity: ...
9/16/2009-	Teaching ethics to paediatrics residents: the centrality of the therapeutic alliance: ...
9/15/2009-	Development and validation of the Family Decision-Making Self-Efficacy Scale: ...
9/15/2009-	Everyday Ethics Issues in the Outpatient Clinical Practice of Pediatric Residents: ...
8/31/2009-	Supporting Health Care Reform is the Right Thing to Do: ...
8/27/2009-	Disclosing financial conflicts of interest to research participants may not be enough: ...
8/26/2009-	Setting Priorities for Patient Safety: ...
8/17/2009-	A moral obligation? Should the U.S. produce enough H1N1 flu vaccine to help developing countries?: ...
8/14/2009-	What neither side will admit about health care 'rationing': ...
8/11/2009-	Review: Social Justice: The Moral Foundations of Public Health and Health Policy: ...
8/6/2009-	Advancing Ancillary Care in Developing Countries: Many studies have offered recommendations on how to improve ancillary care in clinical settings but few have examined the role this crucial care plays in public health research ...
8/6/2009-	Virtual Colonoscopy: A Window Into the Challenges of Health Care Reform: Virtual Colonscopy ...
7/30/2009-	The course and correlates of high hospital utilization in sickle cell disease: Evidence from a large, urban Medicaid managed care organization: ...
7/19/2009-	Spirituality Research Study : Berman Institute faculty member, Daniel Finkelstein recently met with collaborators and consultants to finalize preparations for a spirituality research study. ...
7/2/2009-	Pluripotent Stem Cell-Derived Gametes: Truth and (Potential) Consequences : Stem-Cell Dervied Gametes Facts and Bioethics Ethics ...
6/29/2009-	Pregnancy and Pills : Berman Institute Director, Ruth Faden, joins colleagues Maggie Little and Anne Drapkin Lyerly in leading the Second Wave campaign to secure fair benefits from medical science for pregnant women. An article discussing the campaign, Pregnancy and Pill ...
6/15/2009-	Neuroimaging in Psychiatry: Evaluating the Ethical Consequences for Patient Care : ...
6/5/2009-	Categorizing Empirical Research in Bioethics : In the target article, Kon (2009) classifies empirical research in bioethics into four hierarchical categories: Lay of the Land, Ideal versus Reality, Improving Care, and Changing Ethical Norms. This attempt is not the first to categorize this growin ...
5/28/2009-	What Works and What Doesn't: Berman Institute Director, Ruth Faden, interviewed about comparative effectiveness research by Jonathan Moreno , Senior Fellow, Center for American Progress ...
5/10/2009-	A Custom Drug : When diseases like swine flu hit, pregnant women are especially at risk. ...
5/2/2009-	Medicine on the Fringe: Stem Cell-Based Interventions in Advance of Evidence: Stem Cell-Based Interventions ...
3/7/2009-	Moving from research ethics review to research ethics systems in low-income and middle-income countries: ...
3/7/2009-	New Approach to Study Research Ethics Proposed: Low- and middle-income countries face complex challenges associated with the ethical conduct of scientific research and the protection of research participants ...

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