"The Adoptee"--Identity, Adjustment and Mental Health
Adoption is a legal, social and biomedical category. In the popular consciousness, the life of the "adoptee" is plagued with identity struggles and mental illness. This seminar addresses how research associating adoption with mental illness reflect and/or respond to the de-normalization of persons reared by non-biological parents.
A new biopolitics of race and health attributes disparate health outcomes to race-based genetic difference and prescribes race-specific therapies to address them. I will argue that this genetic approach obscures the social determinants of health as well as the need for social change to eliminate health inequities.
After a brief overview of the history of women and medicine, I survey the current state of affairs to show how women are still “out” in the areas of (1) health care insurance; (2) medical management of pregnancy, birth, and lactation; and (3) medicine and academic medicine. I then identify the problem as a socially structured power system that systematically favors the interests of men over those of women, and explain why such a system is so difficult to uproot. Finally, I use some theoretical tools in the feminist bioethicist’s kit to begin to create bioethics for others groups that are “out.”
Email ishan@jhu.edu for more media on this seminar.
"Race in 21st Century Genomics Research: An Empirical Study and Some Preliminary Findings
This presentation will report on results from a three year long laboratory ethnography that took place at five field sites around the US. Each site was a laboratory or group of laboratories conducting genome wide association studies, whole genome sequencing, and/or admixture mapping studies. Our study assessed the ways in which researchers operationalize the notion of "a human population" as they are collecting samples, generating and analyzing data, and reporting results. This talk will report on preliminary results and will situate those results within a larger framework of scholarship on the use of race variables in science.
"Sixty-Five Cases: The Consent Process in Phase I Childhood Cancer Trials"
At the end of this presentation the participant will be able to: 1) Review preliminary findings of a descriptive study to characterize the informed consent process for the participation of children in Phase I cancer studies. 2) Understand the evidence from interviews conducted with parents and older children after the consent process. 3) Articulate the compelling ethical questions that arise in this context where the goals of research and the goals of patient care may compete.
"What is Gained by Adding a Disability Perspective to Bioethics?"
There may be some people writing in bioethics who believe that “disability community” critiques are utterly incompatible with the bioethics agenda, but I believe they are mistaken. In fact, for many of the same reasons that bioethics is enriched by narrative, feminist perspectives, and cross-cultural perspectives, it is enriched by paying attention to the scholarship and advocacy coming from disability studies and the disability rights movement.
As the US program of torture of detainees evolved after its start in 2002, the military and CIA, in different ways, came to invoke medical criteria and physician and psychologist oversight as a means of "protecting" detainees subject to harsh interrogation. The integration of psychologists and medial personnel into the regime became central to its justification, legal approval, and practice, and was considered by the agencies involved to be ethically appropriate. How this came about and its implications for U.S. interrogation policy and the roles of health professionals in military and intelligence agencies will be explored.
Professor of Neurology, Case Western Reserve University
Monday April 26
Location: 615 N. Wolfe Street, W3008
“From Eugenics to the 'New' Genetics: The Play's The Thing”
Karen Rothenberg, JD, MPA
Marjorie Cook Professor of Law, University of Maryland School of Law
Visiting Faculty, Johns Hopkins Berman Institute of Bioethics
Monday April 12
Location: 615 N. Wolfe Street, W3008
Sheila Hutzler Rives Memorial Lecture in Palliative Care
"Continuing Controversies in Pediatric End of Life Care"
Alan Fleischman, MD
Senior Vice President and Medical Director March of Dimes Foundation Clinical Professor of Pediatrics and Clinical Professor of Epidemiology and Population Health Albert Einstein College of Medicine
Monday March 8
Location: 615 N. Wolfe Street, W3008
Rethinking IRBs With Some Empirical Evidence
Charles Lidz, PhD
Research Professor of Psychiatry, University of Massachusetts
Monday September 21 Location: 615 N. Wolfe Street, W3008 Bettina Schoene-Seifert Fair access to health care: priority setting, rationing, and the criterium of effectiveness-thresholds
Monday, May 11 Location: 615 N. Wolfe Street, W4030 Norman Daniels, Ph.D., Mary B. Saltonstall Professor of Population Ethics and Professor of Ethics and Population Health, Harvard School of Public Health
Monday, April 27 Location: 615 N. Wolfe Street, W4030
Thomas Pogge, Ph.D., Professorial Fellow, Centre for Applied Philosophy and Public Ethics at the Australian National University, Professor of Political Science, Columbia University, Research Director, Centre for the Study of Mind in Nature, University of Oslo
Monday, April 13 Location: 615 N. Wolfe Street, W4030
Erika Haimes, Ph.D., Professor of Sociology, Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University, UK
Monday, March 23 Location: 615 N. Wolfe Street, W4030 Alan Goldberg, Ph.D., Director, Johns Hopkins Center for Alternatives to Animal Testing
Monday, March 9
Location: 615 N. Wolfe Street, W4030 Eric Meslin, Ph.D., Director, Indiana University Center for Bioethics
Monday, February 23
Location: 615 N. Wolfe Street, W4030
Patricia King, J.D.,Carmack Waterhouse Professor of Law, Medicine, Ethics, and Public Policy, Georgetown University
Monday, February 9
Location: 615 N. Wolfe Street, W4030
Jonathan Moreno, Ph.D. Director, The Center for Biomedical Ethics, UVA
Monday, January 26
Location: 615 N. Wolfe Street, W4030
Robert Cook-Deegan, M.D., Director, Duke Institute for Genome Sciences & Policy
Monday, January 12
Location: 615 N. Wolfe Street, W4030
Joseph Fins, M.D., Chief, Division of Medical Ethics, Weill Cornell Medical College
Diane Hoffman, JD, MS, Professor of Law, Associate Dean of Academic Programs, Law & Health Care Program, Director, University of Maryland School of Law
Monday, November 24
Location: 615 N. Wolfe Street, W4030
James Tulsky, MD, Director, Center for Palliative Care & Professor of Medicine & Nursing Duke University
Location: 600 N. Wolfe Street, CMSC 306 Pediatrics (Schaffer Amphitheater) Myra Bluebond-Langer, PhD, MA, Involving Children with Life Limiting and Life Shortening Illnesses in Medical Decisions
Monday, January 14 (Now Posted Online) Location: 615 N. Wolfe Street, W2008 Paul Appelbaum, MD, Blame It on My Genes! Behavioral Genetics and the Causes of Crime
Monday, December 10 12:15 PM Hampton House 208 Leslie Meltzer, Six Degrees of Dignity: Can a Concept With so Many Meanings Play a Leading Role in Bioethics?
Monday, November 26 (Now posted online) 12:15 PM BSPH, W4030 Courtland Robinsonand Gil Burnham, Research Ethics: Working with Conflict-Affected and Hidden Populations
Monday, 03/28 12:00 p.m.-1:30 p.m.
Monday, 10/25 
